I'm really sorry you're going through this, Jay. Persistent, undiagnosed medical issues can be incredibly frustrating and demoralizing, especially when they're causing significant pain and disruption to your life.
The combination of severe abdominal pain, gas, belching, and the recent episode of altered mental status sounds genuinely distressing. It's completely understandable that you're feeling disappointed and worn down by the process.
The high eosinophil count is actually interesting - eosinophils are white blood cells that often increase in response to allergic reactions, certain infections, or inflammatory conditions. This could potentially be relevant to your symptoms, especially if there's some kind of inflammatory or allergic process happening in your digestive tract.
The mental state changes you described - the constant self-narration, unusual movements and expressions - coupled with the confusion and memory gaps the following day, are concerning symptoms that deserve attention. These could potentially be related to your digestive issues through various mechanisms (metabolic disturbances, absorption issues, or even side effects from medications).
While I understand the temptation to give up if the colonoscopy doesn't show anything, there are still potential avenues to explore:
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Ask about the significance of your elevated eosinophil count - this might warrant further investigation for conditions like eosinophilic esophagitis or gastroenteritis.
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Consider requesting a referral to a neurologist, especially given the episode of altered mental status. There can be connections between digestive and neurological symptoms.
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If conventional testing continues to show little, you might want to discuss functional medicine approaches that look at potential food sensitivities, microbiome issues, or other factors that might not show up on standard tests.
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Keep a detailed symptom journal noting what you eat, medications taken, stress levels, and symptoms experienced. Patterns might emerge that provide clues.
I understand the financial burden is significant, which makes the lack of answers even more frustrating. Your feelings are completely valid, and it takes real strength to keep advocating for yourself through this process.
I hope your colonoscopy provides some answers, but regardless of the outcome, your symptoms are real and deserve continued attention and care.