Building a Unified AAC Research Data Infrastructure for the NHS
Specialised AAC services across the NHS hold valuable data on the people they support, the interventions provided, and the technology prescribed. However, this data is fragmented across local SQL databases, Word/PDF case notes, and file storage systems. This fragmentation makes it difficult to answer critical national questions such as:
- Who are the clients currently using AAC?
- What is the distribution of diagnoses (e.g., cerebral palsy GMFCS III–V, MND bulbar vs spinal onset)?